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#datasets

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From the Data Rescue Project: the Data Rescue Tracker. “The Data Rescue Tracker is a collaborative tool built to catalog existing public data rescue efforts so that we can coordinate better across initiatives. At this stage, you can use the tool to help reduce duplication of rescue efforts. The Data Rescue Tracker aims to provide a consolidated overview of who is backing up which dataset from […]

https://rbfirehose.com/2025/04/13/the-data-rescue-tracker/

ResearchBuzz: Firehose | Individual posts from ResearchBuzz · The Data Rescue Tracker | ResearchBuzz: Firehose
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"Almost two dozen repositories of research and public health data supported by the National Institutes of Health are marked for “review” under the Trump administration’s direction, and researchers and archivists say the data is at risk of being lost forever if the repositories go down.

“The problem with archiving this data is that we can’t,” Lisa Chinn, Head of Research Data Services at the University of Chicago, told 404 Media. Unlike other government datasets or web pages, downloading or otherwise archiving NIH data often requires a Data Use Agreement between a researcher institution and the agency, and those agreements are carefully administered through a disclosure risk review process.

A message appeared at the top of multiple NIH websites last week that says: “This repository is under review for potential modification in compliance with Administration directives.”
Repositories with the message include archives of cancer imagery, Alzheimer’s disease research, sleep studies, HIV databases, and COVID-19 vaccination and mortality data."

404media.co/nih-archives-repos

404 Media · Massive, Unarchivable Datasets of Cancer, Covid, and Alzheimer's Research Could Be Lost ForeverDays before Robert F. Kennedy Jr. announced that 10,000 HHS staffers would lose their jobs, a message appeared on NIH research repository sites saying they were "under review."
#USA#Trump#Datasets

Axios: NOAA research websites slated to go dark get a reprieve.”NOAA has averted the early cancellation of an Amazon Web Services contract that would have caused a slew of agency websites to go dark beginning at midnight, the agency said Friday. Why it matters: The outages mainly would have affected NOAA’s research division, and would have made numerous websites and data sets inaccessible to […]

https://rbfirehose.com/2025/04/06/axios-noaa-research-websites-slated-to-go-dark-get-a-reprieve/

Massive, Unarchivable #Datasets of #Cancer, #Covid, #HIV and #Alzheimer's Research Could Be Lost Forever
Days before RFK announced 10,000 #HHS staffers would lose their jobs, a message appeared on #NIH research repository sites saying they were "under review." Unlike other government datasets or web pages, downloading or otherwise archiving NIH data often requires a Data Use Agreement between a researcher institution and the agency.
404media.co/nih-archives-repos
archive.ph/Y8asq

404 Media · Massive, Unarchivable Datasets of Cancer, Covid, and Alzheimer's Research Could Be Lost ForeverDays before Robert F. Kennedy Jr. announced that 10,000 HHS staffers would lose their jobs, a message appeared on NIH research repository sites saying they were "under review."

#ListenBrainz / #MetaBrainz I'm confused. Aren't sponsors the true customer? Why use this? 🤔

On one hand #Music: "Listen together", "Ethical forever"

On the other: #DATASETS

"Some of the world’s biggest platforms such as Google and Amazon, use our data"

"We ask commercial supporters to support us in order to help fund the creation and maintenance of these datasets."

"The following organizations make use of the data-sets published by MetaBrainz"

"Unicorn tier: #Google, #Amazon, #Spotify"

STAT: Gold-standard maternal mortality database in limbo as CDC staff placed on leave. “As part of the sweeping layoffs that rocked the Department of Health and Human Services on Tuesday, the entire staff that oversaw an annual survey to better understand infant and maternal health — and that was considered the gold standard in the field — was placed on administrative leave. The Pregnancy […]

https://rbfirehose.com/2025/04/02/stat-gold-standard-maternal-mortality-database-in-limbo-as-cdc-staff-placed-on-leave/

Clemson News: Study: Researchers’ choices could result in different conclusions from the same data . “If you give hundreds of researchers the same data and the same hypotheses to test, they will reach the same conclusions, right? Wrong, according to a recent study published in the journal BMC Biology. Two hundred forty-six researchers in the fields of ecology and evolutionary biology — […]

https://rbfirehose.com/2025/04/01/study-researchers-choices-could-result-in-different-conclusions-from-the-same-data-clemson-news/

ResearchBuzz: Firehose | Individual posts from ResearchBuzz · Study: Researchers’ choices could result in different conclusions from the same data (Clemson News) | ResearchBuzz: Firehose
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From handling massive #DataSets to streamlining delivery, UC Berkeley #Library is ensuring that #ResearchData is well-managed, accessible, and compliant with licensing agreements through #Dataverse, so resources are discoverable and usable by the entire university community. #RDM #DataManagement youtu.be/XVBUna3wzgk?si=c_Ixa-

youtu.be- YouTubeEnjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.

This data may vanish under Trump, so we charted it
Some of most valuable #datasets in human history vanished from #US #government websites, felt like watching Library of Alexandria go up in smoke
Many have gone on record describing #Census Bureau’s #American Community Survey as wonder of modern world
Another loss? #HouseholdPulse survey, online survey that provided week-by-week data on income losses, economic struggles and precarious mental health
washingtonpost.com/business/20
archive.ph/mB512

The Washington Post · This data may vanish under Trump, so we charted itBy Andrew Van Dam

"On Friday, numerous essential #datasets were #purged from federal agency websites, including #data from #CDC PLACES (Population Level Analysis and Community Estimates), the Social Vulnerability Index (SVI), and the Climate and Economic Justice Screening Tool (CEJST)—to name just a few. While we don’t know when or if this data will return, we want to assure you that they are still accessible on our platform." policymap.com/blog/purged-fede #PolicyMap #PublicHealth #USPol #Project2025 #CivilRights

PolicyMap · Purged Federal Agency Data Available on PolicyMapOn Friday, numerous essential datasets were purged from federal agency websites, including data from CDC PLACES (Population Level Analysis and Community Estimates), the Social Vulnerability Index (SVI), and the Climate...

Lifehacker: Where to Find All Those Deleted Government Websites. “There are a number of efforts from scientists, researchers, journalists, and advocacy groups to compile and save information that has been removed from federal websites (or is at risk). For example, CDCGuidelines.com has downloadable PDFs of documents on topics like contraception, LGBTQIA+ health, and intimate partner violence, […]

https://rbfirehose.com/2025/02/09/lifehacker-where-to-find-all-those-deleted-government-websites/

ResearchBuzz: Firehose | Individual posts from ResearchBuzz · Lifehacker: Where to Find All Those Deleted Government Websites | ResearchBuzz: Firehose
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