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#LongCovid

118 posts86 participants2 posts today
Public
Tom Kindlon

Brain Structural Abnormalities in Patients with #PostCOVID -19 Headache

mdpi.com/2035-8377/17/4/50

Retrospective 30 vs 30 MRI case/control study. "One of our most noteworthy findings is that white matter lesions were identified in 50% of the post- #COVID-19 group, compared to 20% in the control group”

@longcovid
#LongCovid #PwLC #PostCovidSyndrome #LC #PASC #CovidBrain @covid19 #COVID19 #COVID #COVID_19 #SARSCoV2 #CovidIsNotOver #auscovid19 @auscovid19

Public
Tom Kindlon

The US administration has proposed many cuts that may affect ME/CFS or #LongCovid research

Image is from latest Science for ME weekly update

Links:

science.org/content/article/sa

scientificamerican.com/article

thesicktimes.org/2025/03/28/up

fiercebiotech.com/research/stu

@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#PASC #postcovid #postcovid19 #PostCovidSyndrome #COVIDBrain
@covid19 #Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #CovidIsNotOver
@auscovid19

USA - The current administration has proposed many cuts to the NIH and other departments. Cuts or closures may affect ME/CFS or Long Covid research. The final decision on some cuts is still pending. Science "Saying ‘pandemic is over,’ NIH starts cutting COVID-19 research" Article | Thread Scientific American "HHS’s Long COVID Office Is Closing. What Will This Mean for Future Research and Treatments?" Article | Thread The Sick Times "UPDATE: RECOVER Long COVID pathobiology grants restored" Article | Thread Fierce Healthcare 'It's just ugly': Federal funding cuts to Columbia University leave chronic fatigue research in limbo Article | Thread
Public
Denis - The COVID info guy -

🇺🇸 USA: ‘Shrinking my world really small’: How New Yorkers are coping with long COVID.

"One of the most common reported symptoms is chronic, debilitating fatigue. That’s often paired with a punishing condition known as post-exertional malaise — a crash that comes after too much mental or physical activity."

Source: gothamist.com/news/shrinking-m

#longCOVID @auscovid19

Alisha with her husband and dog at home in Brooklyn. Because of chronic fatigue associated with long COVID she has to spend much of the day reclining.
Gothamist · ‘Shrinking my world really small’: How New Yorkers are coping with long COVIDAn estimated 500,000 New Yorkers suffer from COVID’s lingering effects, with 1 in 5 saying the condition significantly limits their activities.
Public *
Bass #AlleBurgers #EcoHumanist

#ejustin46 on X wrote:

For CHILDREN, the risk of LONG COVID after a SECOND INFECTION is 2.08 TIMES GREATER compared to the FIRST INFECTION.
medrxiv.org/content/10.1101/20

🧵threadreaderapp.com/thread/190

#LongCovidKids #LongCovid @longcovid @alleburgers @whn @ABScientist

medRxiv · Reinfection with SARS-CoV-2 in the Omicron Era is Associated with Increased Risk of Post-Acute Sequelae of SARS-CoV-2 Infection: A RECOVER-EHR Cohort StudyIMPORTANCE Post-acute sequelae of SARS-CoV-2 infection (PASC) remains a major public health challenge. While previous studies have focused on characterizing PASC and identifying its subphenotypes in children and adolescents following an initial SARS-CoV-2 infection, the risks of PASC with Omicron-variant reinfections remain unclear. Using a real-world data approach, this study investigates the risks of PASC following reinfections during the Omicron phase in the pediatric population. OBJECTIVE To investigate the risks of PASC diagnosis and 24 PASC symptoms and conditions after reinfection of SARS-CoV-2 during Omicron period in the pediatric population. DESIGN, SETTING, AND PARTICIPANTS This retrospective cohort study used data from the RECOVER consortium comprising 40 children's hospitals and health institutions in U.S. between January 2022 and October 2023. EXPOSURES A second SARS-CoV-2 infection, confirmed by a positive polymerase-chain-reaction (PCR) or antigen tests, or a diagnose of COVID-19, occurring at least 60 days after the initial infection, compared to the initial infection. MAIN OUTCOMES AND MEASURES PASC was identified using two approaches: (1) the ICD-10-CM diagnosis code U09.9 and (2) a symptom-based definition including 24 physician-identified symptoms and conditions. Absolute risks of incident PASC were reported, and relative risks (RRs) were calculated by comparing the second infection episode with the first infection episode groups using a modified Poisson regression model, adjusting for demographic, clinical, and healthcare utilization factors through exact matching and propensity scoring matching. RESULTS A total of 465,717 individuals under 21 years old (mean [SD] age 8.17 [6.58] years; 52% male) were included. Compared to the first infection, a second infection was associated with significantly increased risk of an overall PASC diagnosis (RR, 2.08; 95% confidence interval [CI], 1.68-2.59), and with many specific conditions including: myocarditis (RR, 3.60; 95% CI, 1.46-8.86); changes in taste and smell (RR, 2.83; 95% CI, 1.41-5.67); thrombophlebitis and thromboembolism (RR, 2.28; 95% CI, 1.71-3.04); heart disease (RR, 1.96; 95% CI, 1.69 to 2.28); acute kidney injury (RR, 1.90; 95% CI, 1.38 to 2.61); fluid and electrolyte (RR, 1.89; 95% CI, 1.62 to 2.20); generalized pain (RR, 1.70; 95% CI, 1.48 to 1.95); arrhythmias (RR, 1.59; 95% CI, 1.45-1.74); abnormal liver enzyme (RR, 1.56; 95% CI, 1.24 to 1.96); fatigue and malaise (RR, 1.50; 95% CI, 1.38 to 1.64); musculoskeletal pain (RR, 1.45; 95% CI, 1.37 to 1.54); abdominal pain (RR, 1.42; 95% CI, 1.34 to 1.50); postural orthostatic tachycardia syndromes (POTS)/dysautonomia (RR, 1.35; 95% CI, 1.20 to 1.51); cognitive functions (RR, 1.32; 95% CI, 1.15 to 1.50); and respiratory signs and symptoms (RR, 1.29; 95% CI, 1.25 to 1.33). The risks were consistent across various organ systems, including cardiovascular, respiratory, gastrointestinal, neurological, and musculoskeletal systems. CONCLUSIONS AND RELEVANCE Children and adolescents face significantly higher risk of various PASC outcomes after reinfection with SARS-CoV-2. These findings suggest a cumulative risk of PASC and highlight the urgent need for targeted prevention strategies to reduce reinfections, which includes an increased emphasis on initial or re-vaccination of children. ### Competing Interest Statement Dr. Jhaveri is a consultant for AstraZeneca, Seqirus, Gilead, Sanofi; receives an editorial stipend from the Pediatric Infectious Diseases Society; research support from GSK; and royalties from Up To Date/Wolters Kluwer. All other co-authors have no conflicts of interest to report. ### Funding Statement This research was funded by the National Institutes of Health (NIH) Agreement OT2HL161847-01 as part of the Researching COVID to Enhance Recovery (RECOVER) program of research. ### Author Declarations I confirm all relevant ethical guidelines have been followed, and any necessary IRB and/or ethics committee approvals have been obtained. Yes The details of the IRB/oversight body that provided approval or exemption for the research described are given below: Ethnics committee/IRB of University of Pennsylvania waived ethical approval for this work. I confirm that all necessary patient/participant consent has been obtained and the appropriate institutional forms have been archived, and that any patient/participant/sample identifiers included were not known to anyone (e.g., hospital staff, patients or participants themselves) outside the research group so cannot be used to identify individuals. Yes I understand that all clinical trials and any other prospective interventional studies must be registered with an ICMJE-approved registry, such as ClinicalTrials.gov. I confirm that any such study reported in the manuscript has been registered and the trial registration ID is provided (note: if posting a prospective study registered retrospectively, please provide a statement in the trial ID field explaining why the study was not registered in advance). Yes I have followed all appropriate research reporting guidelines, such as any relevant EQUATOR Network research reporting checklist(s) and other pertinent material, if applicable. Yes All data produced in the present study are available upon reasonable request.
Public
Tino Eberl

Beim fünften Runden Tisch in #Berlin wurden Fortschritte im Umgang mit #LongCovid vorgestellt.

Laut #Gesundheitsminister #Lauterbach zeigen erste Maßnahmen Wirkung, auch wenn es noch keine Heilung gibt. Besonders die #Forschung in #Deutschland hebt sich europaweit hervor.

73 Millionen Euro fließen in Versorgungsprojekte, weitere 45 Millionen in die Betreuung von Kindern und Jugendlichen. #Pharmaunternehmen investieren laut Lauterbach bisher zu wenig.

zdf.de/nachrichten/politik/cor

ZDFheute · Long Covid: Lauterbach sieht erste Erfolge für PatientenBy ZDFheute
#MECFS#PostCovid
Public
ahimsa

“Wake Up and Smell the C*VID: An evening without Eric Bogosian”: new play takes aim at NYC mask ban and more

thecanary.co/global/world-news

"As New York State’s budget deadline looms, so too does the specter of a proposed mask ban …"

"Wake Up and Smell the C*VID isn’t a typical play—it’s an intervention. A rupture. A refusal.

It refuses the erasure of an ongoing mass disabling event."

Canary · “Wake Up and Smell the C*VID: An evening without Eric Bogosian”: new play takes aim at NYC mask ban and more“Wake Up and Smell the C*VID: An evening without Eric Bogosian”: new play takes aim at NYC mask ban and more from Canary on 31 March 2025
#COVID#COVID19#LongCovid
Public
jdm2 🇵🇷

“And for a brief moment, we lived inside the people we both used to be.”

thesicktimes.org/2025/03/21/a-

The Sick Times - Chronicling the Long Covid crisis · A serendipitous friendship taught me my greatest lesson in living with Long COVID: How to just be - The Sick TimesIt’s difficult for me to tell people about Long COVID because it’s impossible for them to understand how someone who looks so “normal” can be so sick. Most of the time, I don’t say anything. But something about Bianca’s warmth made me feel like I could. Little did I know, meeting her would lead me to a new friend who would transform how I lived with Long COVID.
#LongCovid
Public
Augie Ray

#COVID19 Reinfections are more like to lead to #LongCOVID in kids:

STUDY: Compared to the first infection, a second infection was associated with higher risk of:

- 2.08x overall PASC diagnosis
- 3.60x myocarditis
- 2.28x thrombophlebitis and thromboembolism
- 1.96x heart disease
- 1.89x acute kidney injury
- 1.59x arrhythmias
- 1.56x abnormal liver enzyme
-1.50x fatigue and malaise
-1.35x postural orthostatic tachycardia syndromes
- 1.32x cognitive functions

medrxiv.org/content/10.1101/20

medRxiv · Reinfection with SARS-CoV-2 in the Omicron Era is Associated with Increased Risk of Post-Acute Sequelae of SARS-CoV-2 Infection: A RECOVER-EHR Cohort StudyIMPORTANCE Post-acute sequelae of SARS-CoV-2 infection (PASC) remains a major public health challenge. While previous studies have focused on characterizing PASC and identifying its subphenotypes in children and adolescents following an initial SARS-CoV-2 infection, the risks of PASC with Omicron-variant reinfections remain unclear. Using a real-world data approach, this study investigates the risks of PASC following reinfections during the Omicron phase in the pediatric population. OBJECTIVE To investigate the risks of PASC diagnosis and 24 PASC symptoms and conditions after reinfection of SARS-CoV-2 during Omicron period in the pediatric population. DESIGN, SETTING, AND PARTICIPANTS This retrospective cohort study used data from the RECOVER consortium comprising 40 children's hospitals and health institutions in U.S. between January 2022 and October 2023. EXPOSURES A second SARS-CoV-2 infection, confirmed by a positive polymerase-chain-reaction (PCR) or antigen tests, or a diagnose of COVID-19, occurring at least 60 days after the initial infection, compared to the initial infection. MAIN OUTCOMES AND MEASURES PASC was identified using two approaches: (1) the ICD-10-CM diagnosis code U09.9 and (2) a symptom-based definition including 24 physician-identified symptoms and conditions. Absolute risks of incident PASC were reported, and relative risks (RRs) were calculated by comparing the second infection episode with the first infection episode groups using a modified Poisson regression model, adjusting for demographic, clinical, and healthcare utilization factors through exact matching and propensity scoring matching. RESULTS A total of 465,717 individuals under 21 years old (mean [SD] age 8.17 [6.58] years; 52% male) were included. Compared to the first infection, a second infection was associated with significantly increased risk of an overall PASC diagnosis (RR, 2.08; 95% confidence interval [CI], 1.68-2.59), and with many specific conditions including: myocarditis (RR, 3.60; 95% CI, 1.46-8.86); changes in taste and smell (RR, 2.83; 95% CI, 1.41-5.67); thrombophlebitis and thromboembolism (RR, 2.28; 95% CI, 1.71-3.04); heart disease (RR, 1.96; 95% CI, 1.69 to 2.28); acute kidney injury (RR, 1.90; 95% CI, 1.38 to 2.61); fluid and electrolyte (RR, 1.89; 95% CI, 1.62 to 2.20); generalized pain (RR, 1.70; 95% CI, 1.48 to 1.95); arrhythmias (RR, 1.59; 95% CI, 1.45-1.74); abnormal liver enzyme (RR, 1.56; 95% CI, 1.24 to 1.96); fatigue and malaise (RR, 1.50; 95% CI, 1.38 to 1.64); musculoskeletal pain (RR, 1.45; 95% CI, 1.37 to 1.54); abdominal pain (RR, 1.42; 95% CI, 1.34 to 1.50); postural orthostatic tachycardia syndromes (POTS)/dysautonomia (RR, 1.35; 95% CI, 1.20 to 1.51); cognitive functions (RR, 1.32; 95% CI, 1.15 to 1.50); and respiratory signs and symptoms (RR, 1.29; 95% CI, 1.25 to 1.33). The risks were consistent across various organ systems, including cardiovascular, respiratory, gastrointestinal, neurological, and musculoskeletal systems. CONCLUSIONS AND RELEVANCE Children and adolescents face significantly higher risk of various PASC outcomes after reinfection with SARS-CoV-2. These findings suggest a cumulative risk of PASC and highlight the urgent need for targeted prevention strategies to reduce reinfections, which includes an increased emphasis on initial or re-vaccination of children. ### Competing Interest Statement Dr. Jhaveri is a consultant for AstraZeneca, Seqirus, Gilead, Sanofi; receives an editorial stipend from the Pediatric Infectious Diseases Society; research support from GSK; and royalties from Up To Date/Wolters Kluwer. All other co-authors have no conflicts of interest to report. ### Funding Statement This research was funded by the National Institutes of Health (NIH) Agreement OT2HL161847-01 as part of the Researching COVID to Enhance Recovery (RECOVER) program of research. ### Author Declarations I confirm all relevant ethical guidelines have been followed, and any necessary IRB and/or ethics committee approvals have been obtained. Yes The details of the IRB/oversight body that provided approval or exemption for the research described are given below: Ethnics committee/IRB of University of Pennsylvania waived ethical approval for this work. I confirm that all necessary patient/participant consent has been obtained and the appropriate institutional forms have been archived, and that any patient/participant/sample identifiers included were not known to anyone (e.g., hospital staff, patients or participants themselves) outside the research group so cannot be used to identify individuals. Yes I understand that all clinical trials and any other prospective interventional studies must be registered with an ICMJE-approved registry, such as ClinicalTrials.gov. I confirm that any such study reported in the manuscript has been registered and the trial registration ID is provided (note: if posting a prospective study registered retrospectively, please provide a statement in the trial ID field explaining why the study was not registered in advance). Yes I have followed all appropriate research reporting guidelines, such as any relevant EQUATOR Network research reporting checklist(s) and other pertinent material, if applicable. Yes All data produced in the present study are available upon reasonable request.
Public
Fatigatio e.V.

Der Beitrag "Es ist nicht vorbei" beleuchtet die Langzeitfolgen von Covid-19 (#LongCovid), die besonders Beschäftigte im Gesundheits-, Erziehungs- und Sozialwesen betreffen. Anhand einer Krankenschwester wird gezeigt, wie die Erkrankung den Alltag einschränkt.

Nachzulesen in mittendrin Nr. 11, einer Publikation der Vereinten Dienstleistungsgewerkschaft (ver.di) für den Fachbereich Gesundheit, Soziale Dienste, Bildung und Wissenschaft: buff.ly/u1EgdNs
⬇️
1/2

buff.lyEs ist nicht vorbeiHunderttausende leiden unter Spätfolgen einer Corona-Infektion, darunter besonders viele Beschäftigte aus dem Gesundheits-, Erziehungs- und Sozialwesen.
Public
jiujensu🇵🇸

From covid data reports on twitter:
Association between COVID-19 and the development of chronic kidney disease in patients without initial acute kidney injury.
nature.com/articles/s41598-025

NatureAssociation between COVID-19 and the development of chronic kidney disease in patients without initial acute kidney injury - Scientific ReportsWhile the association between COVID-19 and acute kidney injury (AKI) is well documented, the impact of COVID-19 on the development of advanced chronic kidney disease (CKD) remains unclear, particularly in patients without initial AKI. Using the TriNetX healthcare database, we conducted a matched cohort study comparing 141,587 COVID-19 and 141,587 influenza patients. We excluded patients with AKI within one month of infection and matched groups on demographics, comorbidities, and baseline laboratory values. The primary outcome was the incidence of advanced CKD (stages 3–5) at the 12-month follow-up. COVID-19 patients showed higher 12-month risks of advanced CKD (hazard ratio [HR]:2.02, 95% confidence interval [CI]:1.69–2.42, p < 0.0001), AKI (HR 3.04, 95%CI:2.61–3.55, p < 0.0001), and estimated glomerular filtration rate < 60 mL/min/1.73 m2 (HR:3.01, 95%CI:2.74–3.30, p < 0.0001) compared to influenza patients. Subgroup analyses showed consistently elevated risks across sexes and in patients over 45 years, while younger patients did not demonstrate an increased risk of advanced CKD at the 12-month follow-up. Diabetes mellitus and hypertension have emerged as the strongest predictors of advanced CKD development. In conclusion, COVID-19 is associated with an increased risk of long-term renal dysfunction compared with influenza, suggesting the need for extended monitoring of kidney function in high-risk populations.
#COVID19#kidneydisease#longcovid
Public
Jen

Apparently, I need to order my repeat meds "at least 5 (working?) days before they are due." The GP needs 48 hours to do their bit and then the pharmacy need 48 hours to do theirs.

Fine.

But if I order 8 (calendar) days in advance, that's too early, and they won't pass it to the pharmacy until the day I should start taking them.

To avoid stockpiling.

So I'm now thinking about how to create a stockpile.

To avoid withdrawal.

#disability#LongCovid
Public
Málaga AutoDefensa Sanitaria
La mitad de las infecciones de COVID son asintomáticas, lo tienes y no lo sabes
Mínimo el 10% de toda forma de infección acaba en LONG COVID, una enfermedad nueva, la mayoría de los médicos no te creen y usar su autoridad como violencia, las personas pobres y oprimidas son las más afectadas por esta eugenesia
Las vacunas no frenan ni la transmisión, ni la infección, ni el desarrollo de LONG COVID. las vacunas no están siendo actualizadas porque no paran de haber nuevas variantes por la negligencia del estado y la falta de mascarilla colectiva
#MaskUp #WearAMask #CovidRealist #CovidIsAirbone

#LlevaMascarilla #RealistaCovid #CovidSonAerosoles #birdflu #gripeaviar #LongCovid
10 Acciones para la Solidaridad durante la Pandemia
Escrito por @ps4.future
Mientras las instituciones capitalistas producen enfermedades y muerte masivas, no debemos abandonarnos entre nosotros. Juntos, tenemos el poder de dar forma a nuestras comunidades. Para hacerlo, debemos priorizar la salud y la seguridad de todas nuestras personas comprometiéndonos con estas 10 acciones:
1. USAR MASCARILLA: de alta calidad y bien ajustadas.
2. LIMPIAR EL AIRE: con purificadores de aire, abriendo ventanas
3. PRUEBAS FRECUENTES: de calidad PCR cuando sea posible. Aíslate de los demás en tu hogar y comunidad si das positivo o estás enfermo.
4. PLAN CAPAS.
5. COMPARTIR HERRAMIENTAS
6. CAMBIAR LA NARRATIVA: Utiliza un lenguaje intencional para promover la seguridad del COVID-19 y combatir la desinformación, minimización y negación en tus relaciones y comunidades.
7. EXIGIR SEGURIDAD.
8. PROTEGER ESPACIOS PÚBLICOS: Exige requisitos rigurosos y sólidos de seguridad COVID-19. Boicotea a aquellos que no los implementen.
9. EXIGIR PROTECCIÓN GUBERNAMENTAL.
10. ACTUAR EN SOLIDARIDAD: Prioriza tu compromiso con la liberación, lucha contra todos los sistemas de opresión y apoya a grupos que luchan por futuros justos.
Incluso un caso asintomático de COVID puede causar Diabetes
Incluso un caso asintomático de COVID puede causar Fatiga crónica
Incluso un caso asintomático de COVID puede causar ICTUS
Incluso un caso asintomático de COVID puede causar Demencia
Public
Córdoba AutoDefensa Sanitaria
El COVID no ha terminado:
• El 50% de las infecciones son asintomáticas.
• Mínimo 10% de las infecciones acaban en COVID persistente.
• Las vacunas no evitan ni reinfecciones, ni el contagio, ni las secuelas persistentes del COVID.
• Las reinfecciones nos destrozan. No hay forma de “entrenar” el sistema inmunológico porque no es un músculo. hay una idea errónea común de que la exposición a gérmenes dañinos fortalece el sistema inmunológico. las enfermedades virales como COVID, gripe, sarampión debilitan el sistema inmunológico, dejando la posibilidad de daños duraderos. La realidad es que no construyes tu inmunidad con infecciones repetidas, las vacunas fortalecen el sistema inmunológico enseñándole a reconocer los patógenos sin todos los riesgos. Centrarnos en la prevención de las infecciones es clave.
• Un test de antígeno rápido solo logra detectar con éxito alrededor del 60% de las infecciones tempranas sintomáticas y aproximadamente el 22% de las infecciones asintomáticas. Los PCR y test moleculares son los test con más precisión.
• El COVID se propaga y mueve como el humo de un cigarro, piensa en las personas de tu alrededor y en ti como personas que están todo el día fumando, se hace más visual entender cómo se mueve el COVID.
• En las infecciones con síntomas se tarda un par de días en dar los síntomas lo que quiere decir que estás por lo menos un par de días infectando sin saberlo. Eres infeccioso de COVID por lo menos 10 días.

#MaskUp #WearAMask #CovidRealist #CovidIsAirbone

#LlevaMascarilla #RealistaCovid #CovidSonAerosoles #birdflu #gripeaviar #LongCovid
uso respirador porque...el sistema inmune no se “entrena”, el COVID destroza todo el cuerpo y no quiero destrozarle la vida a nadie.
uso respirador porque...he sido discapacitado por el COVID y no quiero crearle ni esto ni la muerte por COVID a nadie.
uso respirador porque...la normalización de los virus solo beneficia a los burgueses y pongo en valor las vidas oprimidas.
uso respirador porque...he escuchado a discapacitados informados y he visto que el COVID sigue siendo un peligro y me niego a participar en el daño que crea.
#LongCovid
Public
datum (n=1)

Hey! Are you in the USA, near-ish to Virginia? Do you (or someone you know) have any of:

  • hypersomnia
  • complex sleep disturbances
  • postural orthostatic tachycardia syndrome, or POTS?

Trials are open for treatments for these symptoms!

Those interested in participating in the trials can contact the clinic for screening to see if they are eligible. The team can be reached via email at covidtrialsuva@uvahealth.org, or by phone at 434-243-4008 or toll-free at 855-882-5334.

and they seem like good folks:

“We see patients coming in who are frustrated because they look fairly normal, but they cannot fully function and are not being believed,” she said. “So, for those people, I want to say this is truly a disease and you are not imagining anything.”

#COVID19#COVID#LongCOVID
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